Tuesday, January 22, 2008

Fascinating Stuff

http://news.bbc.co.uk/1/hi/health/7192420.stm

A friend had sent me this. I had read another article about it too. The twin with the cancer has the same genetic mutation as Catherine. It is called the TEL-AML1 translocation (it involves chromosomes 12 and 21 getting "mixed up"). 20% of kids with pre-B ALL have this translocation making it the most common one. It is also considered a favorable factor in terms of relapse rate. It doesn't guarantee that she won't relapse though which is scary.
Anyway, I always think this stuff is interesting - I hope you do too.

Thursday, January 17, 2008

Happy New Year

So sorry for the delay in updating! We had a great holiday and the kids were thrilled with all their gifts, although some have already lost their luster - so frustrating! I know I am old because I was so glad to see the holidays come to an end. The kids finally met Aidan. Not surprisingly, Alex was simply enthralled with him. Catherine is not much of a baby person, but she does ask for him and is looking forward to seeing him again. Yesterday she asked me if he is nocturnal like an owl because he sleeps so much during the day and gets up at night. I thought that was an astute observation. Speaking of astute, I just came from Alex's parent/teacher conference. He never ceases to amaze me. The teacher said he is very social, a good listener, and a very good example for the other kids. They are working on teaching the kids to recognize their names and I was so excited to hear that not only can he recognize "Alexander" (which I never write out for him, but he can also recognize all the other kids' names! Of course, he saves all his listening skills for school. For the past 2 years, Dave and I always tell him not to go near Catherine's medicine. Now he has gotten a hold of her Bactrim (back when she took that) and her Dapsone. Both are antibiotics and I have been told not to worry if he gets a hold of them. I remember Dr. Elisha once saying to me, just make sure he doesn't take her 6-MP. Well, last week, he finally got a hold of it. I wish Catherine would swallow the medicine as quickly as he did! He was so proud of himself for finding where I put it (it was in Catherine's bathroom as I was getting the kids ready for bed) and taking it. His happiness soon turned to crying when I yelled at him and immediately called 911. They had to rush him down to the ER and give him activated charcoal which absorbs all the toxins in your blood stream and gut. And then you basically eliminate the toxins via bowel movements and vomiting. Not a pleasant experience for anyone and my car now has a slight odor that you get used to after a while. Of course you would think that would teach him a lesson, but he has gone after her medicine since. Now everything is so high up, I can barely reach it. I guess we like to keep things exciting here!
Next up on the calendar is the presentation of Catherine's wish - the Make A Wish people are throwing her an ice cream sundae party in a couple of weeks. And then off we go to Disney in a month!
By the way, three months to go. I am not as excited as you would think. I am already having panic attacks about it. Another mother, whose daughter finishes next week, and I were talking about how we wish we could give them a little something the rest of their lives. Sounds strange I know, but apparently very normal thinking for a cancer Mom.